We asked previvors on Twitter, “What would you like to say to the person on the fence about whether or not to have genetic testing?” Here’s what they had to say.
It’s not painful. You’ll get so much out of it (the answer). You’re strong enough to find out and move forward whatever may come!
— Heather (@ZHeatherChamp)
Having #genetictesting is a highly personal decision and one that you should only make if you are ready to know the results.
— Brandi Forbes (@BRCABrandi)
That #knowledgeispower and knowing your results allows you the opportunity to change your future, to make CHOICES rather than hurried decisions.
— Brandi Forbes (@BRCABrandi)
I would ask “Have you already spoken with a genetic counselor? A CGC can help you decipher if #genetictesting is right for you.” You can talk to a CGC in person or by telephone. Find a CGC by going to nsgc.org. #NSGCgenepool Informed #decisionmaking
— Amy Byer Shainman (@BRCAresponder)
Prevention is priceless! #Hereditarycancer = no boundaries, seeking risk reducing surgery with strong family history trumped all for me after #genetictesting.
— Lisa M Guzzardi, RN (@LguzzardiM)
Very personal unique decisions to undergo #genetictesting, but when armed with knowledge based on research, science prevails. Know ALL options!
— Lisa M Guzzardi, RN (@LguzzardiM)
Science prevails, yes. But I think WE (or I) prevail!
— Heather (@ZHeatherChamp)
Yes, #ThisIsUs! Genetic testing is a prevailing WIN WIN for all, only when it’s provided by certified genetic counselors.
— Lisa M Guzzardi, RN (@LguzzardiM)
Knowledge is power.
— Karen Lazarovitz (@karenBRCAMTL)
#1 concern I hear is about cost/financial. I educate that due to gene patent lift and market competition, cost is now way down!
— Amy Byer Shainman (@BRCAresponder)
Find out all you can about your particular mutation. Your risks for cancer may vary, especially for ovarian cancer, and ovary removal may not be warranted. #Lynchsyndrome
— Georgia Hurst (@ShewithLynch)
Knowledge is power! Do it!
— Sam Sunderwirth (@SamSunderwirth)
Are you a previvor and want to share your advice? Tweet us @MyGeneCounsel or email Ellen Matloff at ellen@mygenecounsel.com.