Our CEO/President, Ellen Matloff, wrote a Forbes piece that was featured by GenomeWeb. It recaps her argument that Facebook needs to regain the trust of patient groups that had relied on its closed groups for support. She explains these groups provide people who “desperately need the support, advice, and friendship of others experiencing the same things.” But, a bug in a Chrome plug-in made users’ data available to third parties, as CNBC reported last month.Read More
Thousands of women who carry mutations in the genes BRCA1 and BRCA2 and joined ‘private’ Facebook groups recently learned that their groups were vulnerable to a Chrome plug-in that allowed marketers to discover group members’ names and other private health information.Read More
If you are adopted and looking for more information about your medical risks, direct to consumer genetic testing is most likely just the beginning of your journey. The best route for adoptees to pursue DNA testing is to speak to a certified genetic counselor to find out which genetic test would be most effective for them to use.Read More
In the article, “Can Genetic Counselors Keep Up With 23andMe?” The Atlantic quotes fellow genetic counselors about how our profession can help consumers understand genetic testing. This article also highlights our upcoming product launch, “Start-ups have emerged to fill the information gap for direct-to-consumer patients by making counseling services more accessible and cheaper. In July, My Gene Counsel plans to launch a digital product that will help users interpret their test results for hereditary cancer genes for a $40 yearly subscription. The service will also send you push notifications as new clinical recommendations or trials become available.”Read More
Our CEO/President led a webinar the National Cancer Institute’s ENRICH series, “A Scalable Model for Returning Continually Updated Genetic Results to Consumers and Clinicians”. Matloff outlines the ethical principles that must be considered in returning understandable, useable and current genetic information. She also discusses how to make people stewards of their genetic data, provide them with research opportunities, and offer them the ability to provide outcome data and share their genetic data in public databases. She describes how research participants in clinical trials and large-scale genomic studies worldwide, and the 12 million consumers who’ve had consumer testing fit into this equation.Read More
Ellen T. Matloff, President and CEO of My Gene Counsel, breaks down the controversy surrounding the recent 60 Minutes episode on Preimplantation Genetic Diagnosis (PGD). Listen to find out what PGD means, how it’s used and why its purpose is often misinterpreted.
One genetic testing company recently grabbed headlines by announcing that for just $249 they will be offering a cancer gene panel that will test for 19 hereditary cancer genes. There is no doubt that low-cost options like these will break access to genetic testing wide open.
Cancer Bytes: By Ellen Matloff
Welcome to Cancer Bytes, featuring interviews with people touched by cancer. We hope that by listening to stories from cancer survivors we can help you through your process of healing and coping with the disease.