Did you know 1 in 10 people in America have a Rare Disease? Individually, Rare Diseases are scarce, but together they are actually quite common with 30 million Americans having a Rare Disease. More than half of those living with a Rare Disease are children…and about...
Updated May 30, 2019 National Cancer Survivors Day is June 2, 2019. To celebrate, we have compiled quotes from cancer survivors and families to educate and inspire others. “I’ve always viewed my family history and genetic information as another tool – knowledge is...
Pfeiffer syndrome has been receiving increased media attention in the wake of Price’s recent death. Why? Because Prince lost a 7-day old son to Pfeiffer syndrome in 1996. Pfeiffer syndrome is a rare condition that affects 1 in 100,000 individuals and is caused by...
Did you know 1 in 10 people in America have a Rare Disease? That means 30 million Americans have a rare disease. February 29th is the rarest day of the year and appropriately marks Rare Disease Day worldwide. Events sponsored by NORD, the National Organization for...
This is the second in a series of articles built to highlight rare hereditary cancer syndromes. This is Elizabeth’s story of living with FAP, also known as Gardner’s Syndrome. Genetic Counseling Note: There are several hereditary cancer syndromes that can...
