Geneticists have long had visions of a future in which medicine would be customized based on each individual’s genetic makeup. But the reality of tailoring treatment based on genetic testing has been a complex, expensive and ethically grey area, and...
This month, doctors in Boston will being the BabySeq project, a trial program conducting whole genome sequencing on 240 healthy babies as well as 240 babies in intensive care. The team will look for genetic mutations that are strongly associated with diseases that...
Last week in Genetic Privacy Part 1, we discussed the potential harm done when a patient chooses not to share her data with other family members. Such arguments, and the argument that widely sharing genetic data would advance scientific research, have made some...