Scalable, Updating Return of Genetic Test Results from 2018 Forward

bioethics

Posts Tagged ‘bioethics’

Scalable, Updating Return of Genetic Test Results from 2018 Forward

The National Cancer Institute hosts a webinar series called Ethical aNd Regulatory Issues in Cancer researcH (ENRICH). This speaker series fosters discussion about ethical and regulatory issues impacting cancer research. Our CEO/President, Ellen Matloff, was the keynote speaker in the latest webinar titled, “A Scalable Model for Returning Continually Updated Genetic Results to Consumers and…

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Jackson Lab's Forum on Healthcare Innovation

“The Forum on Healthcare Innovation: Technology and the Future of Healthcare Delivery” was hosted by Jackson Laboratories in Farmington, CT on the UCONN Health campus on October 25-26, 2017. The conference was full of healthcare innovators and professionals and covered genetic testing (including direct-to-consumer), genomics, the microbiome, patient advocacy and healthcare technology. Check out some…

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Video: Breeding Out Disease

Last autumn 60 Minutes aired a controversial episode on Preimplantation Genetic Diagnosis (PGD), a loaded topic to say the least. In preparation for Newborn Screening Awareness Month this September, we’re revisiting this topic in order to help break it down. Listen to find out what PGD means, how it’s used and why its purpose is often…

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Mobile and Personal Technologies in Precision Medicine Workshop

Last week the Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) hosted a public workshop on Mobile and Personal Technologies in Precision Medicine in Santa Clara, CA. Over the course of two days, speakers from across many sectors made the case that new and emerging technologies will push precision medicine forward by empowering…

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The Days of Cookie Cutter Medicine Are Over

Geneticists have long had visions of a future in which medicine would be customized based on each individual’s genetic makeup. But the reality of tailoring treatment based on genetic testing has been a complex, expensive and ethically grey area, and science, technology and society have yet to catch up. However, now it feels like that vision is…

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New Baby Gene Mapping Project Will Begin This Month

This month, doctors in Boston will being the BabySeq project, a trial program conducting whole genome sequencing on 240 healthy babies as well as 240 babies in intensive care. The team will look for genetic mutations that are strongly associated with diseases that begin in childhood. Then, a geneticist and genetic counselor will explain the results to parents and…

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