Posts Tagged ‘cancer’
Cancer ‘Fight’ Metaphor, To Continue or End?
Is it time to put the cancer ‘fight’ metaphor to rest once and for all? Patient advocates and genetic counselors share their insight. Is it time to put the cancer 'fight' metaphor to rest once and for all? #Advocates, please chime in! #Gencsm #BRCA #Lynchsyndrome #patientadvocates #cancer #patients #PatientExperience — Ellen T. Matloff (@MyGeneCounsel) May…
Read MoreSexuality Clinics – Vaginal Dryness and Pain During Sex
In keeping with our Valentine’s Day theme, we are focusing on sexuality in cancer survivors and previvors. Did you know that there are specialists in this area who can help you (and your partner) to get back in the groove? Here are some tips on vaginal dryness from Sharon Bober, PhD, Director of the Sexual…
Read MoreWhat You Can Do to Prevent Your Genetic Test Results from Being Misinterpreted
Last week we learned that a 36-year old woman from Oregon had genetic testing and was told that she carried a mutation in a gene called MLH1, that causes Lynch Syndrome. According to a lawsuit filed by the woman, she was apparently informed that she was at elevated risk to develop cancer and counseled to…
Read MoreTweetChat: The Gene with Siddhartha Mukherjee
On Monday afternoon we held a tweetchat, #GenCSM, with our amazing co-hosts Georgia Hurst and Amy Byer Shainman and special guest Siddhartha Mukherjee, MD. Sid is the Pulitzer Prize-winning author of The Emperor of All Maladies: A Biography of Cancer, and his most recent book, The Gene, has been highlighted by Bill Gates and was the topic…
Read MoreCancer Moonshot 2016
June 29th, 2016 was Cancer Moonshot day. Over 270 summits across the United States, Puerto Rico and Guam were held. These events initiated the conversation and collaboration between scientists, advocates, researchers, physicians, genetic counselors, politicians, oncologists, nurses, data and technology experts, and patients among others. The goal of the Cancer Moonshot Initiative is to double…
Read MoreNational Cancer Survivor's Day
To celebrate National Cancer Survivor’s Day, June 5th, we have compiled quotes from cancer survivors and families to educate and inspire others. “I’ve always viewed my family history and genetic information as another tool – knowledge is power – I believe that. It empowered me, helped me make treatment decisions, and guided how I should…
Read More