by My Gene Counsel | May 26, 2016 | All, Press, Rare Diseases
Pfeiffer syndrome has been receiving increased media attention in the wake of Price’s recent death. Why? Because Prince lost a 7-day old son to Pfeiffer syndrome in 1996. Pfeiffer syndrome is a rare condition that affects 1 in 100,000 individuals and is caused by...
by user | May 26, 2016 | All, Media, Media section
This recent Medivisor article highlighted the importance of closing the gaps in your family’s health history to make sure you have a clear record. My Gene Counsel’s Ellen Matloff explains that this is crucially important when seeking out genetic testing...
by user | May 24, 2016 | All, Family History, Patient Stories
Photo Credit: MIKI Yoshihito, via Flickr. Updated: March 6, 2019 Our CEO and President, Ellen T. Matloff, sat down with a former patient who also had the perspective of being a medical student. He is now a practicing physician. Carl’s story starts with his mother’s...
by user | May 17, 2016 | All, Beyond BRCA, Patient Stories, Survivorship
Last Updated: January 8, 2019 This article is part of a series built to highlight rare hereditary cancer syndromes. Here’s one woman’s story of living with MUTYH-Associated polyposis (MAP). Genetic Counseling Note: MUTYH is a cancer...
by user | May 14, 2016 | All, Prevention
It’s been three years since Angelina Jolie announced to the world she carries a BRCA1 mutation and had a prophylactic double mastectomy to lower her risks of developing breast cancer. Below advocates reflect on the impact she has made by sharing her story and...
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