Rare Diseases

Are You Living with an Undiagnosed Disease?

Posts Tagged ‘Rare Diseases’

Are You Living with an Undiagnosed Disease?

Are you or a loved one living with an undiagnosed disease? You’re not alone: thousands of Americans—maybe more—go undiagnosed every year, and millions are living with rare diseases. It can take up to 5 years for someone living with a rare disease to get diagnosed, and it takes more than 5 years for 15% of…

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#NSGCGenePool Second Annual Tweetchat

The National Society of Genetic Counselors (NSGC) has launched the second year of its NSGC Digital Ambassador Program. This program highlights advocates and providers in the genetics field who raise awareness about the role of genetic counseling and promote their shared interest across their networks. The group consists of 15 influencers, including our President/CEO, Ellen Matloff,…

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Trailblazing Genetic Counselors Episode 16: Canadian Genetic Counsellors

This is the sixteenth installment in our series, “Trailblazing Genetic Counselors”, in which we highlight genetic counselors who are pioneers in the field. Genetic counselors are health professionals with specialized graduate degrees and experience in the areas of medical genetics and counseling. Genetic counseling is a rapidly growing field offering professionals a wide range of…

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Trailblazing Genetic Counselors: Episode 15

This is the fiftteenth installment in our series, “Trailblazing Genetic Counselors”, in which we highlight genetic counselors who are pioneers in the field. Genetic counselors are health professionals with specialized graduate degrees and experience in the areas of medical genetics and counseling. Genetic counseling is a rapidly growing field offering professionals a wide range of…

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Free Genetics Educational Resources

Updated 4/22/19 Want to learn more about genetics but not sure where to begin? Here are a few free, public resources to get you started, whether you are a middle school student or an adult simply curious about genetics. Everyone is a learner at heart, and many are curious about how genetics works! Learn.Genetics features…

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