by Caitlin Kingsley | Feb 28, 2017 | Genetic Journal
Did you know 1 in 10 people in America have a Rare Disease? Individually, Rare Diseases are scarce, but together they are actually quite common with 30 million Americans having a Rare Disease. More than half of those living with a Rare Disease are children…and about...
by Caitlin Kingsley | May 26, 2016 | Genetic Journal
Pfeiffer syndrome has been receiving increased media attention in the wake of Price’s recent death. Why? Because Prince lost a 7-day old son to Pfeiffer syndrome in 1996. Pfeiffer syndrome is a rare condition that affects 1 in 100,000 individuals and is caused by...
