Facebook Violates Trust of Private Patient Groups

Facebook Violates Trust of Private Patient Groups

Thousands of women who carry mutations in the genes BRCA1 and BRCA2 and joined ‘private’ Facebook groups recently learned that their groups were vulnerable to a Chrome plug-in that allowed marketers to discover group members’ names and other private...
Five Year BRCA SCOTUS Anniversary

Five Year BRCA SCOTUS Anniversary

Today, June 13th, 2018, marks the 5-year anniversary of the Supreme Court of the United States’ Association for Molecular Pathology v. Myriad Genetics case regarding the BRCA gene patent. The result was a unanimous decision: genes could not be patented as they...
Rare Disease Day 2018

Rare Disease Day 2018

Rare Disease Day is an opportunity to raise awareness for 7,000+ rare diseases and the 30 million Americans who are affected by a rare disease(s). The theme for this year’s Rare Disease Day is “Research” and the important role that patients play...