Thousands of women who carry mutations in the genes BRCA1 and BRCA2 and joined ‘private’ Facebook groups recently learned that their groups were vulnerable to a Chrome plug-in that allowed marketers to discover group members’ names and other private...
Is it time to put the cancer ‘fight’ metaphor to rest once and for all? Patient advocates and genetic counselors share their insight. Is it time to put the cancer 'fight' metaphor to rest once and for all? #Advocates, please chime in! #Gencsm #BRCA...
Today, June 13th, 2018, marks the 5-year anniversary of the Supreme Court of the United States’ Association for Molecular Pathology v. Myriad Genetics case regarding the BRCA gene patent. The result was a unanimous decision: genes could not be patented as they...
Rare Disease Day is an opportunity to raise awareness for 7,000+ rare diseases and the 30 million Americans who are affected by a rare disease(s). The theme for this year’s Rare Disease Day is “Research” and the important role that patients play...
