Laura Marotta was just trying to treat her son’s asthma. Instead, the asthma medication led to extreme adverse side effects, including depression, anxiety, and hallucinations. My Gene Counsel’s President and CEO, Ellen Matloff, had the opportunity to talk...
In this one-hour national webinar, hosted by the Network of the National Library of Medicine (NNLM) and the All of Us Research Program, Amy Byer Shainman discusses her memoir, Resurrection Lily: The BRCA Gene, Hereditary Cancer & Lifesaving Whispers from the...
Ellen Matloff, president and CEO of My Gene Counsel, has been described as an advocate and a visionary for her work in the field of genetic testing. “She’s an advocate for patients, for genetic counselors, her team, and her community. She deeply cares for...
In the second installment of PhenoTips Speaker Series, thought leader and decorated patient advocate Ellen Matloff discusses the evolving role genetic counselors play in precision medicine as genetic testing increases in frequency and accessibility. Genetic testing,...
Thousands of women who carry mutations in the genes BRCA1 and BRCA2 and joined ‘private’ Facebook groups recently learned that their groups were vulnerable to a Chrome plug-in that allowed marketers to discover group members’ names and other private...
