patient advocacy

GenomeWeb Quotes Ellen Matloff’s Forbes Article

Posts Tagged ‘patient advocacy’

GenomeWeb Quotes Ellen Matloff’s Forbes Article

Our CEO/President, Ellen Matloff, wrote a Forbes piece that was featured by GenomeWeb. It recaps her argument that Facebook needs to regain the trust of patient groups that had relied on its closed groups for support. She explains these groups provide people who “desperately need the support, advice, and friendship of others experiencing the same things.” But, a…

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Angelina’s Impact: Advocates Share

It’s been five years since Angelina Jolie announced to the world she carries a BRCA1 mutation and had a prophylactic double mastectomy to lower her risks of developing breast cancer. Below advocates reflect on the impact she has made by sharing her story and starting widespread conversation about hereditary cancer and prevention. “Angelina’s efforts have…

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Rare Disease Day 2018

Rare Disease Day is an opportunity to raise awareness for 7,000+ rare diseases and the 30 million Americans who are affected by a rare disease(s). The theme for this year’s Rare Disease Day is “Research” and the important role that patients play in gaining an understanding of rare diseases and developing innovative treatments or cures. This…

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Blazing The Trail: Why Genetic Counselors Must Lead The Genomics Revolution

To celebrate the first Genetic Counseling Awareness Day (November 9th), our CEO/President, Ellen Matloff, presented as the inaugural speaker for The National Society of Genetic Counselors (NSGC) webinar event. Here’s a recap of a few career challenges she shared and her call to action for fellow genetic counselors. You can watch the full webinar on…

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National Cancer Survivors Day

Updated May 30, 2019 National Cancer Survivors Day is June 2, 2019. To celebrate, we have compiled quotes from cancer survivors and families to educate and inspire others. “I’ve always viewed my family history and genetic information as another tool – knowledge is power – I believe that. It empowered me, helped me make treatment…

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