Has the BRCA Monopoly Been Reborn?

Has the BRCA Monopoly Been Reborn?

A controversy has been brewing under the surface for several months in the genetic testing world. Namely, will BRCA carriers with ovarian cancer be forced to undergo BRCA testing a second time, at more than $4,000 a pop, in order to qualify for a new drug called...
The Case For Genetic Privacy

The Case For Genetic Privacy

Last week in Genetic Privacy Part 1, we discussed the potential harm done when a patient chooses not to share her data with other family members. Such arguments, and the argument that widely sharing genetic data would advance scientific research, have made some...
The Case Against Genetic Privacy

The Case Against Genetic Privacy

The debate about who should have access to genetic test results has been argued for decades. There are many factors to consider, including: individual rights, the rights of family members, medical liability, insurance issues, and the betterment of scientific research....