The National Cancer Institute hosts a webinar series called Ethical and Regulatory Issues in Cancer Research (ENRICH). This speaker series fosters discussion about ethical and regulatory issues impacting cancer research. Our CEO/President, Ellen Matloff, was the keynote speaker in the latest webinar titled, “A Scalable Model for Returning Continually Updated Genetic Results to Consumers and…

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Sue Friedman Sue Friedman is the Founder and the Executive Director of FORCE: Facing Our Risk of Cancer Empowered, a national non-profit organization dedicated to improving the lives of those with hereditary breast, ovarian, and related cancers.  Sue has been a well-known leader in the BRCA community for many years — this is a bit…

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In the weeks leading up to National Cancer Survivors Day on June 7th we will be bringing you powerful stories of survivorship. One thing that has unfortunately become clear as genetic testing becomes more common place is that genetic counseling, a crucial step in the process, is not always offered in tandem with testing. This…

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Last week was a great reminder of the power of the consumer – namely, You. Forbes published an article about Angelina Jolie with which many of us in the hereditary cancer community took issue. Some felt the tone was a bit snarky and that the medical and scientific facts were not accurate. Those of us…

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