Ehlers-Danlos syndrome

Rare Disease Day 2017

Posts Tagged ‘Ehlers-Danlos syndrome’

Rare Disease Day 2017

Did you know 1 in 10 people in America have a Rare Disease? Individually, Rare Diseases are scarce, but together they are actually quite common with 30 million Americans having a Rare Disease. More than half of those living with a Rare Disease are children…and about 30% of these children will not live to see their…

Read More

Rare Disease Day 2016!

Did you know 1 in 10 people in America have a Rare Disease? That means 30 million Americans have a rare disease. February 29th is the rarest day of the year and appropriately marks Rare Disease Day worldwide. Events sponsored by NORD, the National Organization for Rare Disorders, are held throughout the world. These events…

Read More