Seven years ago, if you had told me that I would ever author an article by this title, I would have laughed. I was not a fan of direct-to-consumer (DTC) genetic testing and was an unapologetic critic. But it’s hard to ignore how the world of genetics has changed...
The National Cancer Institute hosts a webinar series called Ethical and Regulatory Issues in Cancer Research (ENRICH). This speaker series fosters discussion about ethical and regulatory issues impacting cancer research. Our CEO/President, Ellen Matloff, was the...
Last Updated: January 3, 2019 Does “gene editing” make you think of designer babies? But what if, instead of selecting for ‘desired’ traits, the edits were used to prevent serious, debilitating, and life-threatening conditions and diseases? CRISPR technology may...
My Gene Counsel Offers a Digital Solution to the Genetic Counseling Gap A recent article published in JAMA Oncology found that the majority (63%) of women who pursued genetic testing for BRCA testing never received genetic counseling. Researchers surveyed women whose...
Gabbie (left) and her best friend/caregiver Meaghan (right) Did you know that November is National Caregivers Month? Today we are sharing the story of two friends, one BRCA positive and the other who stood by her side through a prophylactic bilateral mastectomy. Being...