May 2019 Update So, I am starting from scratch. With Ellen’s support, I figured out how to get my mother’s medical records so that I can start to fill in our pedigree. Working for mCG helped me to realize that this information is empowering, not threatening. You know what’s scary? Not having all the facts.…

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September is Newborn Screening Awareness Month! Get educated by learning of a few of the disorders included in newborn screening and how they can be treated. In the United States, when a baby is born he/she is screened for an array of conditions that, if known about, could dramatically improve or save the baby’s life.…

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In the words of the National Institute of Health, precision medicine is an approach to disease treatment and prevention that accounts for individual variability in genes, environment and lifestyle. In simpler terms, precision medicine means using a tailored treatment approach for each person based on their actual disease, rather than a one-size-fits-all approach. The aim of President…

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