BRCA

GenomeWeb Quotes Ellen Matloff’s Forbes Article

Posts Tagged ‘BRCA’

GenomeWeb Quotes Ellen Matloff’s Forbes Article

Our CEO/President, Ellen Matloff, wrote a Forbes piece that was featured by GenomeWeb. It recaps her argument that Facebook needs to regain the trust of patient groups that had relied on its closed groups for support. She explains these groups provide people who “desperately need the support, advice, and friendship of others experiencing the same things.” But, a…

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Cancer ‘Fight’ Metaphor, To Continue or End?

Is it time to put the cancer ‘fight’ metaphor to rest once and for all? Patient advocates and genetic counselors share their insight. Is it time to put the cancer 'fight' metaphor to rest once and for all? #Advocates, please chime in! #Gencsm #BRCA #Lynchsyndrome #patientadvocates #cancer #patients #PatientExperience — Ellen T. Matloff (@MyGeneCounsel) May…

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5-year BRCA SCOTUS Anniversary

Today, June 13th, 2018, marks the 5 year anniversary of the Supreme Court of the United States’ Association for Molecular Pathology v. Myriad Genetics case regarding the BRCA gene patent. The result was a unanimous decision, genes could not be patented as they occur naturally. We reflected back on this day, how far we have…

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Angelina’s Impact: Genetic Counselors Share

It’s been five years since Angelina Jolie announced to the world she carries a BRCA1 mutation and had a prophylactic double mastectomy to lower her risks of developing breast cancer. Below genetic counselors reflect on the impact she has made by sharing her story and starting widespread conversation about hereditary cancer and prevention. “Angelina Jolie’s…

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Angelina’s Impact: Advocates Share

It’s been five years since Angelina Jolie announced to the world she carries a BRCA1 mutation and had a prophylactic double mastectomy to lower her risks of developing breast cancer. Below advocates reflect on the impact she has made by sharing her story and starting widespread conversation about hereditary cancer and prevention. “Angelina’s efforts have…

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