Facebook Violates Trust of ‘Private’ Patient Groups

Facebook Violates Trust of ‘Private’ Patient Groups

Thousands of women who carry mutations in the genes BRCA1 and BRCA2 and joined ‘private’ Facebook groups recently learned that their groups were vulnerable to a Chrome plug-in that allowed marketers to discover group members’ names and other private health...

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If I’m Adopted, Should I Have DNA Testing?

If I’m Adopted, Should I Have DNA Testing?

As a certified genetic counselor, one of the most common questions I’m asked is whether people who are adopted should have DNA testing through a direct-to-consumer (DTC) testing company.  I’ve found that the reasons adoptees, or the parents of adoptees, want...

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How Your Genetic Data Could Be Shared Without Your Consent

How Your Genetic Data Could Be Shared Without Your Consent

As a genetic counselor, it is always challenging to tell the patient sitting in front of you that she carries a genetic mutation (or, a pathogenic variant, as it is now called) that could negatively impact her health.  But, perhaps more challenging, is telling the...

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