GENETIC JOURNAL
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How Hugo Campos Became a Healthcare Data Liberation Advocate
We recently interviewed Hugo Campos, a newly named White House Precision Medicine ‘Champion of Change,’ on his personal experience in the healthcare system and how he is working to shift 'business as usual.' Here’s what he had to say.Ellen T Matloff: You...
Jo Handelsman, Ph.D, Presents on the Precision Medicine Initiative
On Friday, July 10th, 2015 Jo Handelsman, Ph.D., the Associate Director for Science at the White House, presented on the Precision Medicine Initiative at Jackson Laboratory for Genomic Medicine in Farmington, CT.President Obama launched the initiative, explaining,...
Mobile and Personal Technologies in Precision Medicine Workshop
Last week the Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) hosted a public workshop on Mobile and Personal Technologies in Precision Medicine in Santa Clara, CA. Over the course of two days,...
Interview with Amy Gleason, COO of CareSync
We recently sat down with Amy Gleason, COO of CareSync and newly named White House Precision Medicine 'Champion of Change' to find out how she and her company are disrupting the healthcare system with a mix of technology and patient advocacy. Here's what she had...
Understanding Sarcoma
Updated June 25, 2019 What is sarcoma? Sarcoma is a group of cancers that often start in the soft tissue or bone. Soft tissue is composed of fat, blood vessels, nerves, muscles, deep skin tissues, and cartilage. What are the types of sarcomas? Soft tissue sarcoma and...
21st Century Cures Act Approved by House of Representatives
On July 10, 2015, the House of Representatives approved the 21st Century Cures Act (H.R. 6) with a vote of 344-77. This act will launch healthcare into the 21st century by "investing in science and medical innovation, incorporating the patient perspective, and...
Precision Medicine Champions of Change Honored at White House
Last week the White House recognized nine Precision Medicine "Champions of Change" who were selected for their work to advance the goals set out by the President's Precision Medicine Initiative (PMI). The PMI aims to make using a tailored treatment approach for...
Discussion: Precision Medicine Initiative
In the words of the National Institute of Health, precision medicine is an approach to disease treatment and prevention that accounts for individual variability in genes, environment and lifestyle. In simpler terms, precision medicine means using a tailored treatment...
GINA Put To the Test
Updated May 3, 2019 What would really happen if an employer or health insurance company tried to improperly use genetic information? Has GINA ever been tested? Yes. GINA was put to test when two warehouse workers were awarded $2,225,000 in 2015 because their company,...