GENETIC JOURNAL
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Will You Be One of the PMI Cohort’s First 1 Million Volunteers?
A major component of the Precision Medicine Initiative (PMI), announced by President Obama in January, is the PMI Cohort Program (PMI-CP) – a new research cohort of a million or more volunteer participants. This research cohort will help to expand our knowledge and...
Discussion: Who Really Has Access to Genetic Testing?
Last week we held a Tweet Chat with our amazing co-hosts Georgia Hurst and Amy Byer Shainman, special guest Sharlene Hesse-Biber, PhD and host Ambry Genetics to discuss a very important issue in genetic testing: Who...
Newborn Screenings May Lead to Early Detection and Treatment
September is Newborn Screening Awareness Month! Get educated by learning of a few of the disorders included in newborn screening and how they can be treated.In the United States, when a baby is born he/she is screened for an array of conditions that, if known about,...
How Hugo Campos Became a Healthcare Data Liberation Advocate
We recently interviewed Hugo Campos, a newly named White House Precision Medicine ‘Champion of Change,’ on his personal experience in the healthcare system and how he is working to shift 'business as usual.' Here’s what he had to say.Ellen T Matloff: You...
Jo Handelsman, Ph.D, Presents on the Precision Medicine Initiative
On Friday, July 10th, 2015 Jo Handelsman, Ph.D., the Associate Director for Science at the White House, presented on the Precision Medicine Initiative at Jackson Laboratory for Genomic Medicine in Farmington, CT.President Obama launched the initiative, explaining,...
Mobile and Personal Technologies in Precision Medicine Workshop
Last week the Precision Medicine Initiative (PMI) Working Group of the Advisory Committee to the NIH Director (ACD) hosted a public workshop on Mobile and Personal Technologies in Precision Medicine in Santa Clara, CA. Over the course of two days,...
Interview with Amy Gleason, COO of CareSync
We recently sat down with Amy Gleason, COO of CareSync and newly named White House Precision Medicine 'Champion of Change' to find out how she and her company are disrupting the healthcare system with a mix of technology and patient advocacy. Here's what she had...
Understanding Sarcoma
Updated June 25, 2019 What is sarcoma? Sarcoma is a group of cancers that often start in the soft tissue or bone. Soft tissue is composed of fat, blood vessels, nerves, muscles, deep skin tissues, and cartilage. What are the types of sarcomas? Soft tissue sarcoma and...
21st Century Cures Act Approved by House of Representatives
On July 10, 2015, the House of Representatives approved the 21st Century Cures Act (H.R. 6) with a vote of 344-77. This act will launch healthcare into the 21st century by "investing in science and medical innovation, incorporating the patient perspective, and...