Rare Diseases


Rare Diseases

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A Family’s Journey from Asthma to Depression to Advocacy

Laura Marotta was just trying to treat her son's asthma. Instead, the asthma medication led ...
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Are You Living with an Undiagnosed Disease?

Are you or a loved one living with an undiagnosed disease? You’re not alone: thousands ...
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Trailblazing Genetic Counselors Episode 18: Patient Experience Part II

This is the eighteenth installment in our series, “Trailblazing Genetic Counselors”, in which we highlight ...
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Trailblazing Genetic Counselors Episode 17: Patient Experience Part I

This is the seventeenth installment in our series, “Trailblazing Genetic Counselors”, in which we highlight ...
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#NSGCGenePool Second Annual Tweetchat

The National Society of Genetic Counselors (NSGC) has launched the second year of its NSGC Digital ...
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Rare Disease Day 2018

Rare Disease Day is an opportunity to raise awareness for 7,000+ rare diseases and the ...
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