Video: Whole Exome Sequencing in Newborns

Video: Whole Exome Sequencing in Newborns

One of the many controversies in the field of genetics is whether or not we should be performing whole exome sequencing in children and newborns to screen for diseases. Listen to My Gene Counsel President and CEO, Ellen T. Matloff, explain why this type of testing is...
Genetic Privacy Part 2: The Case For

Genetic Privacy Part 2: The Case For

Last week in Genetic Privacy Part 1, we discussed the potential harm done when a patient chooses not to share her data with other family members. Such arguments, and the argument that widely sharing genetic data would advance scientific research, have made some...
Video: Whole Exome Sequencing in Newborns

Video: The Question of Genetic Privacy

The debate about who should have access to genetic test results has been argued for decades, and with good reason. In this video, our President and CEO Ellen T. Matloff discusses the wide reaching implications genetic testing can have for patients and their...
Genetic Privacy Part 1: The Case Against

Genetic Privacy Part 1: The Case Against

The debate about who should have access to genetic test results has been argued for decades. There are many factors to consider, including: individual rights, the rights of family members, medical liability, insurance issues, and the betterment of scientific research....